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Lupus






Lupus Information

Lupus Information Center - Health through knowledge and power: information, statistics, little known facts, common lupus misconceptions, and more than 60 personal stories.

The Lupie Bin - Lupus information, support, stories and FAQs. Questions from fellow lupies and their friends and family are welcome.

Lupus symptoms and signs

Arthritis Insight - Lupus - Symptoms, lupus treatment, information and support.

Mixed Connective Tissue Disorder - An autoimmune process with symptoms of Scleroderma, Systemic Lupus Erythematosus, Rheumatoid Arthritis and/or other autoimmune diseases. This page describes symptoms and treatments and has lists of useful links.

Lupus - Disease facts, symptoms, treatment and lupus coping strategies hosted by Hamline University. Link to the alt.support.lupus newsgroup.

alt.support.lupus FAQ - Frequently asked questions and answers addressing symptoms, treatments, common lupus diagnostic tests and procedures, and filing for disability in the US and UK.

Living with the Wolf - Personal experiences dealing with doctors, medications and lupus. Learn about symptoms, sign up for a newsletter, or check out the "venting" message board.

Lupus and Art - Jaynee Levy-Polis shares her personal experience with mild Central Nervous System disease as well as information about lupus symptoms, treatments, and coping.

Systemic Lupus

Systemic Lupus Erythematosus Hub - Clinical trial reports, case studies, research findings and news. Directory of personal sites, organizations, and support groups.

Systemic Lupus Research Studies - Clinical research team from Northwestern University Medical School describe current research, summarize findings, and answer frequently asked lupus questions.

Mixed Connective Tissue Disorder - An autoimmune process with symptoms of Scleroderma, Systemic Lupus Erythematosus , Rheumatoid Arthritis and/or other autoimmune diseases. This page describes symptoms and treatments and has lists of useful links.

Juvenile Rheumatic Disease Group - Online support for parents of children with a JRD, including juvenile rheumatoid arthritis, juvenile scleroderma, juvenile dermatomyositis, juvenile systemic lupus, and other rheumatic disorders. Includes resources.

Lupus Association Singapore - About Systemic Lupus Erythematosus (SLE) in Singapore, for the layperson and the patient. Chinese guide also available.

Lupus Trust of New Zealand - Volunteer organisation dedicated to raising awareness of systemic lupus erythematosus (SLE) within the New Zealand community.

Genetics of Systemic Lupus Erythematosus Family Study - Open research study at University of Minnesota seeking multiple family members with systemic disease to investigate why certain women are prone to lupus through identification of inherited genetic factors.

Chinese Traditional Medicine and Systemic Lupus Erythematosus (SLE) - Describes treatments from practitioners in China so with TCM herbal products and herbs. Information about books, qigong, tuina and acupuncture included.


The Lupus disease

About.com: Lupus - Directory of news, information, and support for patients with this disease.

Lupus Den - Information and support for men, women and children with lupus.

Advice Concerning Lupus - Overview of the types of disease, nutrition and alternative therapies, and proposes a "battle plan".

Lupus Health - Find information and facts about systemic disease and learn how you can be part of a clinical trial.

Mama's Health - Lupus - Learn about lupus disease types, prevalence, and treatment.

Little Bit on Lupus - Information about systemic disease, and some answers to commonly asked questions.

Arthritis Insight-Lupus - Symptoms, treatment, information and lupus support.

Lupus at Suite101.com - Includes information, with articles written by a nurse who has the disease. Offers ask a question area and a chatroom.

Lyssa Ann Living with Lupus - Personal story of one patient with insights regarding coping emotionally, raising children, and dealing with the unpredictable disease.

I Fell Down: A Story of Lupus - The author tells about her life with this disease. Find support, lupus links, chat and prayer.

Sarah's Lupus Webpage - Directory of pamphlets, articles, and personal stories to learn more about lupus, coping mechanisms, and support.

Terri's Angels of Hope - Learn about Terri's struggle, about her disease, and her life through an online journal. Chats and message boards for fellow sufferers including lupus, COPD, and congestive heart failure.

St Thomas' Lupus Trust - Offers information about the organization as well as the disease. Includes lupus FAQs, the clinics, research, publications and journals, how you can help and contact details.

Lupus Living & Fibromyalgia - Patient and RN present facts and support group for living with the disease.

Pediatric Rheumatology - A resource for families and physicians caring for children with arthritis, lupus, scleroderma, Kawasaki disease and other rheumatic diseases.

Juvenile Rheumatic Disease Group - Online support for parents of children with a JRD, including juvenile rheumatoid arthritis, juvenile scleroderma, juvenile dermatomyositis, juvenile systemic lupus, and other rheumatic disorders. Includes resources.

Rumpleduck Travel - A travel agency for the traveller with fibromyalgia, CFS, and related diseases such as lupus and MS.

Pediatric Rheumatology Home Page - A resource for families and health professionals caring for children with arthritis, lupus, scleroderma, kawasaki disease, SLE, and other rheumatic diseases.

Lupus Foundation of Colorado - The Foundations mission is to improve the quality of life for people affected by Lupus and to promote efforts for the diagnosis, treatment, prevention and cure of the disease.

Lupus Foundation of New Hampshire - Provides education, support groups, and doctor referrals for those afflicted with Lupus. Disease facts, local support group directory, membership information, message board, and related links.

Lupus Foundation of Illinois - Provides information and resources that will help site visitors better understand and manage this disease. Online store, donations, lupus facts and figures, sponsors, and contacts are featured.

Lupus Foundation of Massachusetts - Support and services for those with Lupus, and family members. Information about the disease, list of support groups statewide and an event calendar.

Dorough Lupus Foundation - Official site for this non-profit organization started by Howie Dorough and his family. Aims to aid in research, education of the public, and providing financial assistance to individuals who cannot afford treatment for the disease.

Lupus Foundation of America: South Carolina Chapter - Information on this chronic, autoimmune system disease.

Northwest Florida Lupus Foundation - Disease information, physician referral list, support group meetings and special events.

Skin Lupus Center of New York - Diagnosis and treatment of skin-related disease, including Discoid, Tumid, and Subacute Cutaneous. Includes directory and a forum maintained by Dr. Andrew G. Franks.

Lupus Support Group - A physiotherapist run group for people with this disease, family and friends. Includes links and contact details (Southport, England).

Genetics of Systemic Lupus Erythematosus Family Study - Open research study at University of Minnesota seeking multiple family members with systemic disease to investigate why certain women are prone to this illness through identification of inherited genetic factors.

Rheumatology Section, University of Chicago - Information for patients, physicians, and medical professionals on arthritis, gout, lupus, scleroderma, and related diseases and disorders.

Hospital for Special Surgery - Rheumatology Division - This journal-like site provides in-depth information for patients and physicians for all rheumatic conditions, including arthritis, lupus, osteoporosis, fibromyalgia, Lyme disease, scleroderma, gout, and joint pain management.


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